After a young girl was hospitalized for her seizures, she and her mom were going through some difficult times. Fortunately, the nurses helped brighten up their day with some nail polish.
Le Shepard’s 9-year-old daughter, Alyssa, had been in and out of the hospital multiple times for seizures.
“She has a genetic disorder called PCDH19 epilepsy that causes her to have seizure clusters as well as cognitive and behavior issues,” she wrote in her post for Love What Matters.
When we were fostering our little kids, our agency was very concerned that children would hurt themselves running into…
“When Alyssa was younger, we had months where we spent more time in the hospital than out because her seizures were so out of control,” wrote her mother. “Eventually things calmed down and we started to hope Alyssa would be one of the lucky ones with this disorder who outgrow their seizures.”
For two years, Alyssa didn’t have any seizures until it came back in November 2017.
“It was devastating to say the least. At first the seizures were small enough that we could manage them at home with extra medications, but a few weeks ago she had a seizure in her classroom that lasted 7 minutes,” she wrote.
Shepard brought Alyssa back home from school, but when her daughter had the second seizure, she drove her to Cook Children’s hospital in Ft. Worth, Texas.
“It was still an emotional roller coaster to be back in a hospital room though. In my head I was right back at the beginning when they first told us the seizures might kill my daughter,” she recalled. “Alyssa had a pretty rough night but started to pull out by the next morning.”
The next day, the little Alyssa made an unusual request. “When the nurse did her rounds and checked on us, she asked if we needed anything. Alyssa popped up and said she needed her nails done,” Shepard said.
Alyssa’s mother thought her daughter’s wish was hilarious and didn’t expect the nurse to accede to Alyssa’s request.
“But a little while later, a child life specialist showed up at the door with sparkly polish,” Shepard said.
We're resting after a long week. On Tuesday, Alyssa had so many seizures that we ended up spending the night at Cook…
“The manicure absolutely made Alyssa’s day and was a bright spot in an otherwise hard day. It also meant the world to me to see her being her normal self even with EEG leads still glued to her head.”
Shepard is extremely grateful to the nurse and the specialist for helping her to “breathe a little easier.”
“When you’re parenting a child with PCDH19, sometimes the disorder can seem bigger than the kid. … I can’t say ‘thank you’ enough for that,” Shepard said.
Kudos to the hospital staff for going out of their way to help the patients!
Clown doctor’ visits hospital. Watch what he does for a little patient—your heart will melt