When a couple learned during a 20-week ultrasound that their daughter had a terminal birth defect—she didn’t have a brain—mom decided to carry her to full term to donate her organs and save the lives of more children. The couple knew that there were other parents out there praying for a miracle and their daughter could be that miracle.
Keri and Royce Young learned that their baby, whom they named Eva Grace Young, had anencephaly, a rare condition where part of the baby’s brain and skull do not form in the womb, and, unfortunately, the condition is fatal after birth. It affects only one in every 100,000 babies born.
“She has perfect feet and perfect hands. She has perfect kidneys, perfect lungs and a perfect liver. Sadly, she doesn’t have a perfect brain,” the Oklahoma mom wrote in a heartbreaking Instagram post. “We found out recently she has anencephaly and is terminal.”
The couple had the options either to terminate the pregnancy or carry the baby to full term. Keri made a tough decision to go with the second, so the baby’s organs could be donated to other children in need, whose parents know that, in order for their children to live, someone else’s has to die. Eva’s life could be the miracle they have been praying for.
“This was not an easy decision,” she wrote. “For the next 20 weeks I will feel her kick, [I’ll] have the hiccups, and we’ll be able to hear her perfect heart beating all while knowing we’ll only get a few short hours with her when she’s born.”
Royce wrote on a Facebook post that his wife was a “superhero” for making the tough decision. The post received over 72,000 likes. He added how Keri’s attitude and determination lifted his spirits, saying it was like “watching a superhero find her superpowers.”
“In literally the worst moment of her life, finding out her baby was going to die, it took her less than a minute to think of someone else and how her selflessness could help,” he wrote. “It’s one of the most powerful things I’ve ever experienced.”
“She’s TOUGH. She’s BRAVE. She’s incredible. She’s remarkable,” he added.
Royce and Keri also have a 2-year-old son named Harrison. On the day of Eva’s birth, the family came together to say goodbye to her.
“We said hello and goodbye to our sweet Eva,” Keri posted on Facebook. “She was so perfect in her own little way.”